This week in Parliament I met with the CEO, Susan Booth, and other representatives of Ehlers-Danlos Support UK to discuss how we can improve support for people with Ehlers-Danlos Syndromes (EDS).

EDS are a group of generic disorders which make connective tissue abnormal - leading to loose, unstable joints and a range of other symptoms.

The Government has published the 'Rare Diseases Framework' to improve outcomes for people with rare diseases. It sets out 4 priorities - deliver earlier diagnosis, increase awareness among healthcare professionals, improve access to specialist treatment, and provide coordinated care.

The Government is also increasing funding for new research, including £790 million of investment into Biomedical Research Centres.